Wednesday, March 30, 2011

New info

I thought that after this past Monday I was only going to have one chemo left; after seeing Dr. Klimo he explained that I will need 3 more so that they can "wean" me off the three drugs. Very disappointing!! Anyway, I guess I have three more chemos left and then I will go on a pill - two weeks on, two weeks off - for how long? not sure. I'm pretty sure we are making it up as we go along ;) 

I will have another PET scan after the chemo is done and that will determine if radiation is necessary. Dr. Klimo thinks that if the scan comes back clear, then there's no point in radiation ~ "what is there to radiate?". My last oncologist felt that radiation should be done just to be sure there weren't any cancer cells left behind. It's a big decision because radiation can have a lot of serious side effects: damage my heart, damage my skin, cause bad swelling in my arm that may not ever go away and could even limit movement.

Whatever, we decide to do PET scans will need to be done on a regular basis ~ probably every three months ~ to keep on top of it. I am hoping that Dr. Klimo can get every second one covered by medical.

Tuesday, March 22, 2011

Clinical Trial Starting Soon

In many ways, Kelly helped me to get to where I am today. Without talking with her I wouldn't have ever realized the importance in getting a PET scan; I would have went along with my oncologist and believed what the other scans had reported. If I had not had a PET so early I believe my cancer metastases would have progressed much further and would have been much more difficult to treat.

I would really appreciate it if you would check out Kelly's website. She is now working with the B.C. Cancer Agency to start a clinical trial using Professor Pachmann's Circulating Tumors Test and Chemosensitivity Testing. The clinical trial will be starting soon and is open to breast cancer patients whose cancer has metastasized. If you know anyone who might be interested in this trial please pass along her website. If you have any feedback about her website ~ what you found helpful or perhaps, unclear, I would like to pass it along to her and she would appreciate your comments.

http://kellysclinic.ca/