Ok. I had to remove the "count up" because I couldn't stand the millisecond counter; that was obnoxious!
Here's my update:
Last Thursday I had a PET scan. They gave me the disc when I left as I had a chemo appointment the next day so I could give it to my doctor. I brought my laptop with me so I could check it out as soon as I was done but my damn laptap wouldn't open it! Anyway, when I got home I was able to open it; it was very difficult to read. I could clearly see that there is still cancer in multiple spots but it was very difficult to compare it to the last one. I was hoping that since I would be at the clinic all day Friday getting my chemo that the written report would come in; of course it didn't (I won't get into the mix up with that right now... maybe tomorrow if I'm in that kind of mood) I have another appointment tomorrow so I should get the results then. I'm really hoping for at least stable so I can continue on this chemo. That might sound weird to those of you who don't have experience with chemo and aggressive cancer but basically, there are a limited number of chemos to try so I'm not super eager to go plowing through them. I will update again after I get my PET results and talk to the dr about what they mean in terms of treatment.
Last Friday I was suppose to start Day 1 of my 5th Cycle but it had to be delayed AGAIN. My hemoglobin and platelets were too low so I ended up having another blood transfusion. It's getting a little stressful because we have our Disneyland trip booked for the 23rd and I want to be well enough to do all the walking but I also don't want to have to miss too many treatments. If Day 1 starts this Friday (which it better!) then I will have to skip Day 8 as that would be two days before Disneyland. Then I will just start Day 1 of my 6th cycle right when we get back. The nurses at Lions Gate Chemotherapy booking office have been super accommodating in all my scheduling requests. We haven't told the kids about Disneyland yet. Firstly, I want to make sure that I can actually go before I tell them and then, we also want it to be close to the date so they don't have to count down too many sleeps (even though that's part of the fun!) ;)
Our Thanksgiving weekend wasn't that great. Darren took Treydon into Children's Hospital on Saturday morning because he had really bad stomach pains. He had been sick since Wed evening with flu like symptoms but these stomach pains were REALLY bad. The doctor there figured it was just the flu. While they were out I was tidying the house (lots of energy from the transfusion the day before) and I started having troubles focusing. I was sitting down at the computer and I couldn't read the screen because of weird squiggly lights coming in from my peripheral vision. I called the nurses line and of course they told me to go straight to the hospital and that I should see a dr within an hour. So Treydon had just come back and now Darren had to take me to the ER. He decided we should just go to Surrey because it was closest (BAD idea and I will NEVER go back there again) We sat in a waiting room full of sick people, wearing uncomfortable masks sitting uncomfortable chairs for over 6 hours before we saw a dr. And this was even after I explained my entire history and exaggerated my low white blood counts. Then I had a brain CT because they figured it was probably brain tumors. We waited over an hour for those results (which were fine, thank god) and by the time we got out of there it had been 8 hours! At least I was feeling better and the CT came back clear. They have referred me to a neurologist but I'm hoping I just over did it with the cleaning - so clearly I can't do anymore cleaning ;) Then Sunday rolls around... Treydon is too sick to go for Thanksgiving dinner and is VERY upset he can't go so I stay home with him. At about 8pm he spikes a fever so i give him a big dose of Tylenol. Within 15min he's complaining of right side lower abdominal pain. Dr. Google tells me he has an appendicitis so I take him back to Children's. Of course, all his symptoms get better but now I'm not sure if it's the Tylenol I gave him or the stomach pain really is gone. Anyway, we wait there almost two hours and get an xray right away and the dr says it looks like he has pneumonia; it's not too bad but he prescribes antibiotics and we are on our way.
That's my update for now. I will update again in the next few days.
Hi, Jackie - I read your blog periodically and noticed your statement about"...weird squiggly lights coming in from my peripheral vision." I had same thing, thought for sure it was a brain tumor, turned out to be an Ocular Migraine. Might be something to consider as you look for cause of your symptoms. Here's a link for more info:
ReplyDeletehttp://www.allaboutvision.com/conditions/ocular-migraine.htm (Wish you all the best - in uncovering the cause of the "squiggly lights" problem and in your fight with TNBC!